Multiple sclerosis?
Multiple sclerosis?Hi, i am 31 years old and my Nuro thinks I may have MS. Over the past two year I have been having problems. It started with very bad headaches and sometime it was like something was trying to pull my eye out. Then the next thing I know I was having problems with blurred vision. The headaches can last for days and nothing stops the headaches.I also have body aches sometime I fill as if something is trying to pull evey bone in my body out.I also do a lot of falling for no reason I can be walking and just fall.I have numbness in my limbs. And also have Tremors. I had a MRI in 2001 of the brain and it showed that there MIGHT me MS.. MIGHT is a big word for a abn mri. And also had a MRI of my c-spine and it showed sclerosis.So my doctor did 3 more in the past three years and all showed the same as befor. Needless to say my doctor didnt was to look in to it. So he droped it. In the mean time I have been in and out of the hospital. Onece was because I couldnt talk with out Stuttering and couldnt stop shaking and was in a lot of pain. So he sent me to a nuro for my pain. He thought it was from me having a bad back. Well i know longer see that doctor i olny see the nuro and she wasnt very happy to find out i was in and out of the hospital. She told me that I have a lot of symptoms of ms. I have to go this week and have more tests ran. she is doing a MRI of the brain and also of my c-spine and then she is doing a spinal tap. So to say I am very scared. Does anyone know if it can run in the family? There is 3 or 4 2nd cousins in my family that does have ms.
- allgiggles1984
sorry, wish i could help. there M.E and there M.S. so what does the M.E stand for.google it and u might find more info. good luck.
- shaiinfomed
Unfortunately you have some of the signs of MS. There is no cure for MS but you can exercise and change some things in your diet that may help alleviate the symptoms. Such as lightening up on the caffeine as well as other things. I am so sorry to hear that you have that illness I know it can be debilitating. Good luck.
- mamasunshine
My dad had MS and we were told it wasnt' herditary. He had two cousins with it. Check out http://www.msinbalance.com/ Don't worry they seem to be coming close to a way to slow it down.
- Tony
Sounds like your doctor, has not been very helpful, in getting a proper diagnoses for you. Try out these sites, they contain lots of useful information, sounds like you need to explore some alternative medicine, and get your self to see a chiropractor, they will help to realign your spine and maybe even help with your mobility. There is a lot of progress recently in this area which has many positive benefits for people with MS.
www.mssociety.org.uk
www.nmss.org
- disabilitylady
First of all, a diagnosis of MS is NOT the end of the world!! I'm saying this as someone who has been successfully managing MS for over 45 years!!
Secondly, MS may or may not be hereditary - at this point they do not know its causes. There are anecdotal accounts of families having multiple members having MS; in other families, there may be multiple members who have other autoimmune diseases with only one person having MS. Finally, you find families with only the one person having MS.
Here's what they DO know for sure:
1) Women have MS 2X more then men.
2) The further away from the equator that you spend the first 10 years of your life, the higher the possibility becomes that you will get MS.
3) There's some sort of connection between MS and something called "T-cells" - but beyond this, I'm way out of my league!!!
Now, some additional information about MS symptoms and symptom management.
First of all, here are my qualifications for providing you with this answer:
1) I've successfully managed the symptoms of MS for over 45 years.
2) I was an HR Executive for over 30+ years, and combined my professional and personal expertise in creating a website dedicated to assisting folks with "chronic disease symptoms" better document, communicate, corroborate, and manage their symptoms and the resulting impairments to become expert patients; chronic disease self-managers; and, partner with their doctors to practice patient-centered health care.
http://www.disabilitykey.com
My website contains tons of information in 2 blogs, downloadable free articles and self-help ebooklets, and the Disabilitykey Workbook which contains over 100 pages of how to processes and actual forms - blank and completed examples - to assist folks. This workbook is available for a very small price (under $ 10).
Here's a blog that I did that discusses not only the top 22 MS symptoms, but what - at least a year ago - were the top medications used to help you better manage those symptoms. The reason that I like this list of symptoms and their associated "management aids" is that precisely because MS has so many symptoms, you may need to take some time to do some "introspection" to figure out which TYPE of symptom do you haave!! For example: do you have "plain vanilla" depression, or do you have depression coupled with either pain or fatigue? The management aids for the 3 different "types" of depression are different; so, the more precise and specific you can become shen documenting both your symptoms and how they impair you so that you can better inform your doctor, the better your doctor can assist you with symptom management!!
So, your Doctor tells you that you have a disease. You know that you have symptoms that impair you in your every day life, but you want your Doctor to give you something to make the pain/symptom go away!
What is the best medication for your symptoms, for your illness? Remember, only your Doctor can help you. However, the better informed that you are about what is out there, the better you can discuss alternatives with your Doctor(s).
The following information comes from the National MS Society website. Now, most disease medication lists start with the brand name first, with the SYMPTOM that it is to address almost as an after thought. BUT, we, the patients, start with the symptom first, so that's how I have decided to sort the medications. Here goes. Products available without a prescription are so indicated (+).
Once again, this will provide you with information to discuss with your Doctor. By having options of medications for a symptom, you and your Doctor can discuss which treatment would be best for you, given your other symptoms, your specific condition, and any other factors that only your Doctor can know. And, if you do not know what the symptom means (I'm not sure that I know what "Paroxysmal itching" is) you can ask your Doctor, and learn something new!
Fatigue: Amantadine; Cylert; Provigil
Spasticity: Baclofen; Dantrium; Intrathecal Baclofen (ITB Therapy); Valium (muscle spasms); Zanaflex
Constipation: Mineral oil (+); Colace (Docusate (+)); Dulcolax (Bisacodyl (+)); Enemeez Mini Enema (Docusate stool softener laxative (+)); Fleet Enema (Sodium phosphate (+)); Metamucil (Psyllium hydrophilic mucilloid (+)); Phillips' Milk of Magnesia (Magnesium hydroxide (+)); Sani-Supp suppository (US) (Glycerin (+))
Erectile dysfunction: Papaverine; generic viagra; Levitra; MUSE; Prostin VR; Viagra
Nausea; Vomiting; Dizziness: Antivert (US), Bonamine (Can)
Paroxysmal itching: Atarax
Disease-modifying agent: Avonex; Betaseron; Copaxone; Novantrone; Rebif;
Urinary tract infections: Bactrim; Septra; Cipro; Macrodantin
Urinary tract infections: (preventative) Hiprex, Mandelamine (US); Hip-rex, Mandelamine (Can)
Urinary tract infections (symptom relief): Pyridium
Urinary frequency: DDAVP Nasal Spray; DDAVP Tablets
Bladder dysfunction: Detrol (US); Ditropan; Ditropan XL; Oxytrol (Oxybutynin Transdermal System); Pro-Banthine; Sanctura; Vesicare (US)
Bladder dysfunction; Pain: Tofranil
Depression: Effexor; Paxil; Wellbutrin; Zoloft
Depression, Pain (neuropathic): Cymbalta
Depression; Fatigue: Prozac
Tremor: Laniazid; Nydrazid
Tremor; Pain; Spasticity: Klonopin (US), Rivotril (Can)
Acute exacerbations: Decadron; Deltasone; H.P. Acthar Gel; Solu-Medrol
Pain (dyesthesias): Dilantin; Neurontin
Pain (paresthesias): Elavil; Pamelor (US), Aventyl (Can)
Pain (trigeminal neuralgia): Tegretol
Now that you have read all 22 categories of Multiple Sclerosis symptoms that HAVE a medication that might mitigate it, and know of many others that have no associated medication, I'll bet that you are asking yourself how do I make the link between knowing that I have one or more of these, and explaining how this symptom impairs me? If you have these questions, please check out our website at http://www.disabilitykey.com.
Also, please feel free to im me or email me by clicking on my Yahoo name.
Finally, here are some suggestions:
1) Document your symptoms and their impairments.
2) use any Internet search engine and plug in the words "MS symptoms". Then you can see if you have any or all of them.
3) Then, go to see your doctor, better prepared to partner with him/her in getting you a diagnosis not only for your "condition", but for medications and/or other suggestions for "managing" your symptoms.
Finally, please feel free to contact me by clicking onto my Yahoo name and email me or im me with additional questions along your process of discovery.
Best wishes.
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